Fibromyalgia / CFS

Posted July 19, 2019

This page will keep you updated about our Fibromyalgia and CFS (Chronic Fatigue Syndrome) related activities, as well as the press coverage generated from these activities.


11th July 2019 – Fibromyalgia network event brings sufferers and experts together – Newbury Today

Fibromyalgia network event

4th July – Independence from Fibromyalgia Day

Taking place on 4th July, Independence Day, was an informal interactive event for young adults (16-30) with Fibromyalgia, Chronic Fatigue Syndrome and M.E in West Berkshire – their carers and supporters.

There were short presentations by guest speakers, which allowed people an opportunity to discover more about symptoms and treatments to help alleviate them.

There was also opportunities to fact-find, share experiences and network with experts and fellow sufferers, at this relaxed and friendly event.

 


25th June 2019 – Independence from Fibromyalgia day banner and poster

Independence from Fibro banner
Independence from Fibromyalgia Day Poster

20th June 2019 – Specialist advice for young people with chronic illnesses.

Specialist Advice for young people with chronic illnesses
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17th May 2019 – Healthwatch Campaign to Turn West Berkshire Purple

Healthwatch West Berkshire Campaign to Turn West Berkshire Purple
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17th May 2019 – ITV News Meridian Fibromyalgia coverage

ITV Meridian Fibromyalgia Lucy

16th May 2019 – Newbury Today Coverage of Fibromyalgia purple weekend.

Purple Weekend

11th May 2019 – Campaign to turn Westberkshire purple

LOCAL groups and businesses worked to turn West Berkshire purple as part of an international awareness campaign for people suffering from fibromyalgia.

Healthwatch West Berkshire (HWWB) joined forces with the Department of Pain Medicine at Royal Berkshire Hospital (RBH) for the event last weekend.

A range of organisations displayed posters and changed their window displays and lighting in order to support the #MillionsMissing campaign, which aims to get those with fibromyalgia/chronic fatigue syndrome (CFS) and myalgic encephalomyelitis (ME), and their symptoms visible within the community.

 


The Turn West Berks Purple activity is part of a larger project in the region, sponsored by HWWB to raise awareness of the conditions, particularly among young people aged 16 to 30.

Read more details about this campaign by clicking HERE



1st November 2018 – Fibromyalgia event reaches out to young people – Newbury Today

Fibromyalgia event reaches out to young people

30th October 2018 – Fibromyalgia Youth event Launch

An event to launch research and awareness into chronic conditions suffered by young people was held at West Berkshire Community Hospital last Tuesday (30th October 2018)

It was attended by young people aged between 16 and 30 years old, living with fibromyalgia and chronic fatigue syndrome, (also known as ME), along with their carers, family and friends. 

The event coincided with the launch of a research project into the conditions by clinical lead for pain medicine at the Royal Berkshire Hospital Dr Deepak Ravindran.

Guests, including members of the West Berkshire Fibromyalgia Support Group, watched the BBC Newsbeat documentary ME and me, whose presenter Emma Donohoe was diagnosed with the condition when she was 19.

Fibromyalgia event reaches out to young people
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The film revealed how 250,000 people in the UK who suffer with the debilitating conditions live with their painful and varied symptoms, that remain widely misinterpreted and misunderstood. 

The documentary showed young people whose conditions were so severe they were unable to tolerate light, sound or food.

The project is funded by Healthwatch West Berkshire, match-funded by Greenham Trust and supported by West Berks Fibromyalgia Support Group.

 


5th July 2018 – Movie raises awareness of Fibromyalgia – Newbury Today

Movie raises awareness of Fibromyalgia

20th June 2018 – Healthwatch West Berkshire launches young adults Fibromyalgia/CFS sufferers research and highlights #missingmillions at film screening

The special screening by Healthwatch West Berkshire of Unrest on Wednesday, 20th June 2018 at Newbury College was attended by Steve McManus, CEO of Royal Berkshire Hospital and Dr Deepak Ravindran, the Clinical Lead for Pain Medicine at Royal Berkshire Hospital, as well as sufferers of Fibromyalgia, CFS (Chronic Fatigue Syndrome) and ME (Myalgic Encephalomyelitis), along with their friends and family. 

 

Visitors to Newbury College on Wednesday evening were confronted with pairs of shoes, reflecting the worldwide campaign to raise awareness of those suffering from the complex, debilitating conditions Fibromyalgia, ME and CFS. 

Read more about this activity HERE


14th June 2018 – Insight into Chronic Fatigue Syndrome – Newbury Today

Insight into Chronic fatigue syndrome

18th May 2018 – Unrest film event poster

Unrest Poster